OUR FIRST BLOG !!!

First of all, I just want to say thank you !! 

Thank you to every single person who has been part of the amazing community we have built through The Brain Wavez — whether you’ve joined us online, come along to one of our in-person meet-ups, shared your story, asked a question, offered support, or simply been there.

When The Brain Wavez started, it was honestly just a crazy idea. One of those ideas that you have and think, “Could we actually do this?”

And somehow, that little idea has grown into something that I am incredibly proud of.

More importantly, it has grown into a community filled with people who understand that living with seizures and epilepsy can sometimes feel incredibly isolating — but it doesn’t have to be.

We’re the first seizure support group created specifically for women with lived experience, and our goal has always been to create a safe, welcoming space where people can connect, talk openly, laugh, learn and share experiences.

Our in-person meet-ups have become such a huge part of that. The conversations can genuinely be about anything and everything — from seizures and epilepsy to relationships, work, everyday life, funny stories and everything in between.

But I think the most special part is the friendships you can make with people who genuinely get it. People who understand your experiences because they’ve lived through them too.

Our First Family & Friends Meet-Up

Last week, we held our very first Family & Friends Meet-Up, and we were absolutely blown away by the turnout!

It was our biggest meeting yet, with 13 people joining us — so now we have a new challenge…

Can we beat the record of 13 at our next meet-up?!

It was such an amazing evening and a brilliant opportunity to meet so many new people. It was also lovely to see family members and friends connecting with each other, sharing experiences and talking about everything epilepsy-related — as well as everything in between!

Creating a space where the people supporting us can also feel supported is something that was really important to us, so seeing everyone come together made the evening extra special.

And Now… Something New!

So, I’m very excited to officially welcome you to The Brain Wavez monthly blog! 💜

Every month, I’ll be writing about anything and everything epilepsy and seizure related.

There are so many different sides to epilepsy, and I want this blog to reflect that. Some months might be informative, some might be personal, and some might simply be a chance to have a chat about something that’s been on my mind.

We might talk about things that aren’t always easy to discuss, share experiences from our community, answer common questions, talk about everyday life with epilepsy, highlight upcoming meet-ups, or explore topics that you’ve told us you’d like to hear more about.

There is no one way to live with epilepsy, and there certainly isn’t one single experience of it.

That’s what makes our community so special.

I also want this blog to be something that you guys help shape. If there’s a topic you’d love us to cover, a question you’d like answered, or something you think would be helpful for our community, please reach out to us. I’d absolutely love to hear your ideas.

This is my absolute passion project, and I feel so lucky to be able to grow it alongside such an incredible community.

And finally, our next meet up will be on the 1st of November - save the date !!!

Thank you again for being part of The Brain Wavez. Whether you’ve been here from the beginning or you’ve only just found us, we’re so happy you’re here.

Lots of love,

Grace 💜
Co-founder of thebrainwavez